We present ALS-OPM.org, a freely accessible resource webpage to support clinicians, researchers, and the broader ALS community by providing access to phenotype classification (ALS-OPM) and ALSFRS-R resources.
Clinicians and researchers working in ALS require resources that are accessible, scientifically current, and suitable for integration into routine practice and research workflows. This website aims to address these needs by offering a central hub for standardized ALS-OPM and ALSFRS-R-SE resources in multiple languages.
ALS-OPM.org: A New Hub for ALS-OPM and ALSFRS-R-SE resources. Scan the QR code to visit the website and access freely available resources.
Key Offerings:
The website serves as a central hub for sharing standardized ALS-OPM and ALSFRS-R-SE resources, including an interactive PDF for direct digital data capture.
The ALS-OPM document center provides access to the recent ALS-OPM resources and their versions. The ALS-OPM resources support structured phenotype characterization, while the interactive PDF enables direct digital data capture.
The ALSFRS-R-SE document center provides access to the ALSFRS-R original and ALSFRS-R-SE versions. The self-explanatory version of the ALSFRS-R supports patient self-assessment, reducing the burden on the center and providing data between visits. The resources support their use across different clinical and research settings.
Together, these resources are intended to streamline workflows, improve precision, and reduce variation across sites and studies, both nationally and internationally.
Dedicated download centers for ALS-OPM (left) and ALSFRS-R-SE (right) resources in multiple languages, supporting standardized use in clinical and research settings.